Log in

I forgot my password

Latest topics
» Good few days!!
Yesterday at 9:23 pm by smile22

» I GOT THE SURGERY!!
Yesterday at 8:17 pm by BBnSC

» Losing Hope Big Time
Yesterday at 7:06 pm by ivyrose

» HOW I CURED MY VULVODYNIA - PLEASE READ!!
Yesterday at 6:56 pm by ivyrose

» surpport group in london
Yesterday at 3:21 pm by maggie

» Just joined - lots of questions - let's beat this thing!
Yesterday at 2:11 pm by Loulou

» Crotchless tights
Yesterday at 1:52 pm by Loulou

» Neogyn cream - a new treatment for Vulva Pain?
Yesterday at 11:20 am by bluekangeroo

» Has anyone seen Helen Forth - physio at royal free?
Yesterday at 10:07 am by bluekangeroo

Losing Hope Big Time

Wed May 09, 2012 12:08 pm by Chelsea1991

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it …

Comments: 5

Just joined - lots of questions - let's beat this thing!

Fri May 18, 2012 11:04 am by bluekangeroo

Hello everyone, I just thought I would write a few lines to say hello, I have just jumped in and started firing questions at you all which seems a bit rude. I thought I should say hello and introduce myself.

I'm 35 and have had this pain for about 10 years - ever since a run of urinary and vaginal infections way back when I was travelling in Bankok.

I finally got a diagnoses last year of …

Comments: 1

New to this forum

Thu May 17, 2012 10:59 pm by ninjastar

Hi ladies,
It's very nice to meet other women who share this same issue. I have had vulvodynia for about 4 years now... I went off the pill about 2 years ago and it has significantly improved since then. About 6 months ago, my pain went away to almost nothing. Also, I was using lidocaine on and off and it helped a lot. Well I moved 2 months ago and that partner and I split up, so I have not had …

Comments: 0

HOW I CURED MY VULVODYNIA

Fri May 04, 2012 12:44 am by ivyrose

Hello. Please read this, I want to help as many women as possible. One thing I have learned over the last 3 yrs suffering from this condition is NOT TO ACCEPT EVERYTHING YOUR DR TELLS YOU.

I posted on here a while ago claiming that I had experienced a large decrease in my provoked pain due to taking baking soda baths. Since then the pain came back with vengeance and I realised I was wrong. The …

Comments: 2

Hello all feegal not a happy person atm

Tue May 15, 2012 11:21 am by Feegal

Hmm I am soo wanting to do more exercises with this new machaine I have, it helps to show me how weak or strong my pc muscles, my therapist told me to only start 5 minutes, i did try going with 15 but hurt too much, ( atm I am also bleeding I have the mirena, its just started with the bleeding not happy really,do any of you do pc exerrcise while your bleeding or you just take care and not do …

Comments: 0

Hello I am new, and am looking forward for some support

Sat May 12, 2012 12:21 pm by Feegal

Hello wow, ( I feel soo silly for years I have had this pain for soo long, originally I thought I had vaginismus) for all those years talk more soon not feeling well wil write more later sorry all. I cant wait to connect with you al and explain my story to you all how its effecting myself & my husband soo not fun thats for sure. Sad

I feel I had vaginismus for years, but really …

Comments: 2

Young and not sure how to handle this???

Sun May 06, 2012 6:08 am by cdt2010

Hello all! I normally do not get on these kind of things, but I don't know where else to turn. I have Lupus, which is what they say caused my vulvodynia. I have known about my vulvodynia for about six months and I have known about my Lupus for one year. I am twenty years old, and my family has no idea. I have tried everything I can think of. The gynocolgist (might not have spelled that right) did …

Comments: 0

new to the forum, newly diagnosed

Tue Apr 03, 2012 10:22 pm by It Hurts

I've had such stinging pain at the insertion of anything in this area since August 2008. I was six and a half months pregnant and went to my OBGYN immediately and said, "something's wrong". Of course, it was blamed on the pregnancy and the "blood flow" to that area. I had a C-section (age 38 when I had my first and only daughter, Caroline) and waited the 2 months before …

Comments: 5

hey girls.........................

Wed Apr 11, 2012 1:01 pm by ak1981

I'm 30 years old and I'm from Croatia, Europe. Few weeks ago doctors told me that I have V. I have it for little bit more that 1 year. I think the triger was HPV infection.
I'm reading your posts and still I don't want to belive that there is no cure for V. I can't belive that the old nice life is over. I simply don't want to belive it. Especialy now when I have finaly found the love of my life.


Comments: 1


Sympathy/Empathy is now impossible

View previous topic View next topic Go down

Sympathy/Empathy is now impossible

Post  lolainslacks on Sun May 01, 2011 10:42 am

Does anyone else have this same problem?

Lately I have been finding it almost impossible to sympathise/empathise with anyone else about anything. And it's gotten to the point where I actually become furious with someone and start to resent them when they complain about something. I never verbalise any of my anger, I don't want to upset anyone, and I can't talk openly with everyone about my condition, so I keep my feelings to myself. But I feel like screaming at them. They have no idea how good they have it. They can lead normal lives, and have normal relationships, and they never have to worry about whether or not their partner will leave them because they can't have sex, or whether or not they're going to be alone forever. Their most intimate part doesn't burn and feel like it's ripping apart. My friends complain to me about boyfriend problems, and I feel like scratching their eyes out. My mother complains to me about work, I feel like slapping her. I can't handle other people anymore, because I am constantly comparing their lives to mine. And I feel incredibly resentful of everyone, because I can't help thinking they have no right to be upset about anything as they are not going through anything as painful as what I am. I know it's unfair of me, but I'm having a particularily rough time and it's just they way my mind is at the moment.

Anyway, my question is, do you guys have this problem? And if so, how do you deal with it?

lolainslacks

Posts: 113
Join date: 2011-04-18

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Mouse on Sun May 01, 2011 11:44 am

Hey there,

It's completely natural to be pissed off! It's so bloody unfair and it seems like no one understands. Except us! I feel like it's a trip to crazy town if I did try to explain. In saying that you need support. Do you have friends who do know what's happening? I have a couple who I tell it like it is. I also have a therapist who I unload everything to. That really helps! It's really hard to come to terms with something that makes no sense. Be gentle with yourself.

Take care =)


Mouse

Posts: 303
Join date: 2010-09-09
Location: New Zealand

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  noni on Sun May 01, 2011 12:10 pm

Hey there,

Yes I can completely identify...but I also like to remind myself that EVERYONE is either going through their own personal hell or has gone through it or will be in the future.

I think theres some tough lessons we learn here on earth and everyone gets a unique experience with regards to that. Dunno if im making any sense....but thats what I believe.

Theres always a silver lining though. But when your down in the pits of misery its hard to see beyond any of it.

Sending love,

Noni

noni

Posts: 242
Join date: 2011-01-10
Age: 24
Location: Ontario

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Sebby (Admin) on Sun May 01, 2011 12:22 pm


I can totally relate...

I often compare my life to others and just think its not fair and think why are you moaning...have my life!!!

I do try to tell myself that their problems are hurting them so I should try to extend some love rather than a smack lol

But you know what..I dont see anything wrong in feeling the way you are feeling. Its normal and I do think sometimes we just need to feel damn sorry for ourselves and extend that love to ourselves a bit more


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com

Sebby (Admin)
Admin

Posts: 650
Join date: 2009-12-03
Age: 31
Location: London UK

View user profile http://www.vulvodyniasupportforum.com

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Sarah001 on Sun May 01, 2011 8:21 pm

Yes, me too, I've resented everyone moaning about their normal lives for years, way before the V because of other issues I have. Then I got V and realised previously I had alot less to moan about and feel resentful about and actually even when I feel like I'm at rock bottom life can and frequently does in my case get worse and throw even more shit my way so I try to feel positive about the things I can do and not worry about everyone else and their trivial or even serious moans. Does that make any sense to anyone except me? Laughing Although I was watching an advert earlier where a woman was moaning her skin was dry and found myself saying "I wish that was my biggest problem" at the TV! It's hard to deal with others when you feel so crap like we do and it's even harder I find when their lives are going brilliantly as seems to be the case with everyone around me right now! Lucky bastards!

Sarah001

Posts: 885
Join date: 2010-06-11
Age: 38
Location: UK

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  Aussie on Wed May 04, 2011 7:09 am

Yes I also get this feeling.

Wanting to slap friends that complain about skin problems or work problems. I think, I used to be like that, before I had anything serious to moan about. Now I don't moan about anything at all.

I also resent people wearing jeans I can't stand to look at them and wonder why they arn't walking around with their legs wide open, why it doesn't hurt?! I feel pretty bitter, on the bad days towards thoes who have progressed through physio to the point where they no longer have daily pain, I have been doing this for 7months and I am still $5000 poorer and not completely pain free....yet

I hope soon we will join thoes who only have boys and work problems to worry about.

You have to think though, at least we don't have cancer or no legs for example.....

Keep positive ladies Smile

Aussie

Posts: 199
Join date: 2011-03-15
Age: 23
Location: Queensland, Australia

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  seagirl88 on Sat May 14, 2011 9:22 am

lolainslacks: I couldn't have put it better myself. You just expressed EXACTLY what I've been feeling and struggling with lately, and it makes me feel better to know that there are others out there who understand (even though I don't personally know any). This condition is awful beyond words, and it's impossible for someone who doesn't suffer from it to truly grasp just how much it affects our lives and our futures. The best thing we can do is to just keep fighting and stay strong.

seagirl88

Posts: 14
Join date: 2011-03-14
Age: 23
Location: Washington, USA

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  naomi on Mon May 16, 2011 1:16 pm

can completely relate!!

this condition has made me more determined and pig headed! yet at the same time weak, resentful, over emotional, angry, frustrated, and darn right f*cked off!!!

we are all in the same boat and will get progress!!!

naomi
Moderator

Posts: 246
Join date: 2010-04-10
Location: Cheltenham

View user profile

Back to top Go down

Re: Sympathy/Empathy is now impossible

Post  noni on Thu May 19, 2011 3:11 am

Yes I can share your sentiment Naomi. At times I am very resentful...and the why me syndrome kicks in.

There are just some things in life that defy logic and fairness. No woman deserves this crap condition.



noni

Posts: 242
Join date: 2011-01-10
Age: 24
Location: Ontario

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum