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» Good few days!!
Yesterday at 9:23 pm by smile22

» I GOT THE SURGERY!!
Yesterday at 8:17 pm by BBnSC

» Losing Hope Big Time
Yesterday at 7:06 pm by ivyrose

» HOW I CURED MY VULVODYNIA - PLEASE READ!!
Yesterday at 6:56 pm by ivyrose

» surpport group in london
Yesterday at 3:21 pm by maggie

» Just joined - lots of questions - let's beat this thing!
Yesterday at 2:11 pm by Loulou

» Crotchless tights
Yesterday at 1:52 pm by Loulou

» Neogyn cream - a new treatment for Vulva Pain?
Yesterday at 11:20 am by bluekangeroo

» Has anyone seen Helen Forth - physio at royal free?
Yesterday at 10:07 am by bluekangeroo

Losing Hope Big Time

Wed May 09, 2012 12:08 pm by Chelsea1991

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it …

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Just joined - lots of questions - let's beat this thing!

Fri May 18, 2012 11:04 am by bluekangeroo

Hello everyone, I just thought I would write a few lines to say hello, I have just jumped in and started firing questions at you all which seems a bit rude. I thought I should say hello and introduce myself.

I'm 35 and have had this pain for about 10 years - ever since a run of urinary and vaginal infections way back when I was travelling in Bankok.

I finally got a diagnoses last year of …

Comments: 1

New to this forum

Thu May 17, 2012 10:59 pm by ninjastar

Hi ladies,
It's very nice to meet other women who share this same issue. I have had vulvodynia for about 4 years now... I went off the pill about 2 years ago and it has significantly improved since then. About 6 months ago, my pain went away to almost nothing. Also, I was using lidocaine on and off and it helped a lot. Well I moved 2 months ago and that partner and I split up, so I have not had …

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HOW I CURED MY VULVODYNIA

Fri May 04, 2012 12:44 am by ivyrose

Hello. Please read this, I want to help as many women as possible. One thing I have learned over the last 3 yrs suffering from this condition is NOT TO ACCEPT EVERYTHING YOUR DR TELLS YOU.

I posted on here a while ago claiming that I had experienced a large decrease in my provoked pain due to taking baking soda baths. Since then the pain came back with vengeance and I realised I was wrong. The …

Comments: 2

Hello all feegal not a happy person atm

Tue May 15, 2012 11:21 am by Feegal

Hmm I am soo wanting to do more exercises with this new machaine I have, it helps to show me how weak or strong my pc muscles, my therapist told me to only start 5 minutes, i did try going with 15 but hurt too much, ( atm I am also bleeding I have the mirena, its just started with the bleeding not happy really,do any of you do pc exerrcise while your bleeding or you just take care and not do …

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Hello I am new, and am looking forward for some support

Sat May 12, 2012 12:21 pm by Feegal

Hello wow, ( I feel soo silly for years I have had this pain for soo long, originally I thought I had vaginismus) for all those years talk more soon not feeling well wil write more later sorry all. I cant wait to connect with you al and explain my story to you all how its effecting myself & my husband soo not fun thats for sure. Sad

I feel I had vaginismus for years, but really …

Comments: 2

Young and not sure how to handle this???

Sun May 06, 2012 6:08 am by cdt2010

Hello all! I normally do not get on these kind of things, but I don't know where else to turn. I have Lupus, which is what they say caused my vulvodynia. I have known about my vulvodynia for about six months and I have known about my Lupus for one year. I am twenty years old, and my family has no idea. I have tried everything I can think of. The gynocolgist (might not have spelled that right) did …

Comments: 0

new to the forum, newly diagnosed

Tue Apr 03, 2012 10:22 pm by It Hurts

I've had such stinging pain at the insertion of anything in this area since August 2008. I was six and a half months pregnant and went to my OBGYN immediately and said, "something's wrong". Of course, it was blamed on the pregnancy and the "blood flow" to that area. I had a C-section (age 38 when I had my first and only daughter, Caroline) and waited the 2 months before …

Comments: 5

hey girls.........................

Wed Apr 11, 2012 1:01 pm by ak1981

I'm 30 years old and I'm from Croatia, Europe. Few weeks ago doctors told me that I have V. I have it for little bit more that 1 year. I think the triger was HPV infection.
I'm reading your posts and still I don't want to belive that there is no cure for V. I can't belive that the old nice life is over. I simply don't want to belive it. Especialy now when I have finaly found the love of my life.


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The connection between hormonal birth control and V-problems

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The connection between hormonal birth control and V-problems

Post  Tyger on Fri May 06, 2011 6:08 am

Hi ladies,

I have not seen any posts regarding this, but apologies if there are.

Are any of you knowledgeable about the connection between hormonal contraceptives (any kind; the pill, injection, patch, ring etc.) and the onset of V-complications?

I never properly made the connection until reading something about “atrophic vestibulodynia/vaginitis” or something along those lines… the premise was that the artificial hormone can unbalance things and can cause thinning in the vaginal walls and other complications that lead to ongoing pain symptoms. I don’t think just stopping the pill does anything though. The damage is done, so to speak, and treatment involves stopping the pill and using Estrogen cream.

My main question is… do you think there is some merit to this idea? Do you know anything about it?

I’ve been on the pill (first Levlen, then Diane, then Yasmin) since age 18. Onset of my Vestibulitis (after UTI/Yeast infection) was about a year after that. Doesn’t seem aligned, but who knows?

I won’t be changing my contraceptive until later this year if at all. I’m travelling the second half of the year and don’t want things to be unpredictable. But after that, I may consider going off the pill and seeking that line of treatment. BUT… what contraceptive would I use then!?!? This is the biggest issue… my partner and I DETEST condoms. What other options are there, that are not hormonal?

~Tyger.

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Re: The connection between hormonal birth control and V-problems

Post  Mouse on Fri May 06, 2011 10:25 am

Hi tyger, I'm not going to pretend to be an expert here - Oh maybe I will! What about a Mirena coil? Once it's in which I understand may be an issue, it's in! This thing tends to follow an hormonal route so perhaps get rid of anything that plays havoc with the hormones? Just a thought Smile

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Re: The connection between hormonal birth control and V-problems

Post  Zazu on Fri May 06, 2011 8:52 pm

Hi Tyger,
I'd really recommend that you read a book called "why sex hurts" by drs. goldstein and another woman whose name i forget. We talked about this recently on another thread if you can find it. I was struck that you took Yasmin because in our discussion it seems like many of us (including me) took it and now have VVS.
In any event, in this book, they detail the results of a recent study that women who take birth control pills at a young age have a 900% more likely chance of getting VVS than other women. The reason is interesting. The vestibule is actually formed from a different tissue than the rest of the vulva or vagina. This tissue (I think in the embryo it derives from the uretha) is testosterone dependent to be healthy. When we take the Pill, it binds all the free testosterone in our blood streams (as a side effect), and deactivates it. We have dramatically less testosterone than when we don't take the Pill. This puts the vestibular tissue into crisis in some women and can lead to VVS.
They'll give you a lot more detail on how to treat hormone-caused VVS in the book. But I'd definitely recommend getting off the Yasmin asap!
p.s. I tried the Mirena coil and it was a-w-f-u-l but that's an individual experience. The insertion was very painful so I'm not sure you'd be a candidate if you can't have a regular exam.
Be well!

Zazu

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Re: The connection between hormonal birth control and V-problems

Post  Aussie on Sun Jun 05, 2011 9:40 am

I read of this connection too. But then I tend to think, the amount of women on obc anyway, perhaps just a Coincidence? not sure on this theory I read it on Goldsteins website.

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wOW

Post  BlondeLawyer on Mon Aug 01, 2011 11:36 pm

Im from Canada and I was on YAZ (Not sure if it is the same as YASMIN) and it was horrible. I think I got the V right after i started taking it. along with a breast lump and ovarian cyst. I think there may be some connection? Should I get off the pill?

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YES

Post  Aussie on Tue Aug 02, 2011 1:30 am

Google Dr Golstein and the pill and V.

The pill messes with your hormones and your vulva needs the right balance to funciton properly. I have been off for a month and not noticed a difference yet. My IC is heaps better though!

I just think natural is best now after reading so much on the pill causing v. Yaz is preetty high in hormones. I would advise you get off it.


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Re: The connection between hormonal birth control and V-problems

Post  Aussie on Tue Aug 02, 2011 1:35 am

Also perhaps look into the copper coil. the Marina is still hormones.

We are using non latex condoms for now. No smell, much better feel and does not irritate, hubby says they feel better for him too. We use them with 'Yes' lubricant. The only one I have found to not irritate.

I am considering copper coil but I have painfull irregular periods and think it may worsen this.

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