Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.

New domain name: www.vulvodyniasupportforum.com
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» Good few days!!
Yesterday at 9:23 pm by smile22

» I GOT THE SURGERY!!
Yesterday at 8:17 pm by BBnSC

» Losing Hope Big Time
Yesterday at 7:06 pm by ivyrose

» HOW I CURED MY VULVODYNIA - PLEASE READ!!
Yesterday at 6:56 pm by ivyrose

» surpport group in london
Yesterday at 3:21 pm by maggie

» Just joined - lots of questions - let's beat this thing!
Yesterday at 2:11 pm by Loulou

» Crotchless tights
Yesterday at 1:52 pm by Loulou

» Neogyn cream - a new treatment for Vulva Pain?
Yesterday at 11:20 am by bluekangeroo

» Has anyone seen Helen Forth - physio at royal free?
Yesterday at 10:07 am by bluekangeroo

Losing Hope Big Time

Wed May 09, 2012 12:08 pm by Chelsea1991

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it …

Comments: 5

Just joined - lots of questions - let's beat this thing!

Fri May 18, 2012 11:04 am by bluekangeroo

Hello everyone, I just thought I would write a few lines to say hello, I have just jumped in and started firing questions at you all which seems a bit rude. I thought I should say hello and introduce myself.

I'm 35 and have had this pain for about 10 years - ever since a run of urinary and vaginal infections way back when I was travelling in Bankok.

I finally got a diagnoses last year of …

Comments: 1

New to this forum

Thu May 17, 2012 10:59 pm by ninjastar

Hi ladies,
It's very nice to meet other women who share this same issue. I have had vulvodynia for about 4 years now... I went off the pill about 2 years ago and it has significantly improved since then. About 6 months ago, my pain went away to almost nothing. Also, I was using lidocaine on and off and it helped a lot. Well I moved 2 months ago and that partner and I split up, so I have not had …

Comments: 0

HOW I CURED MY VULVODYNIA

Fri May 04, 2012 12:44 am by ivyrose

Hello. Please read this, I want to help as many women as possible. One thing I have learned over the last 3 yrs suffering from this condition is NOT TO ACCEPT EVERYTHING YOUR DR TELLS YOU.

I posted on here a while ago claiming that I had experienced a large decrease in my provoked pain due to taking baking soda baths. Since then the pain came back with vengeance and I realised I was wrong. The …

Comments: 2

Hello all feegal not a happy person atm

Tue May 15, 2012 11:21 am by Feegal

Hmm I am soo wanting to do more exercises with this new machaine I have, it helps to show me how weak or strong my pc muscles, my therapist told me to only start 5 minutes, i did try going with 15 but hurt too much, ( atm I am also bleeding I have the mirena, its just started with the bleeding not happy really,do any of you do pc exerrcise while your bleeding or you just take care and not do …

Comments: 0

Hello I am new, and am looking forward for some support

Sat May 12, 2012 12:21 pm by Feegal

Hello wow, ( I feel soo silly for years I have had this pain for soo long, originally I thought I had vaginismus) for all those years talk more soon not feeling well wil write more later sorry all. I cant wait to connect with you al and explain my story to you all how its effecting myself & my husband soo not fun thats for sure. Sad

I feel I had vaginismus for years, but really …

Comments: 2

Young and not sure how to handle this???

Sun May 06, 2012 6:08 am by cdt2010

Hello all! I normally do not get on these kind of things, but I don't know where else to turn. I have Lupus, which is what they say caused my vulvodynia. I have known about my vulvodynia for about six months and I have known about my Lupus for one year. I am twenty years old, and my family has no idea. I have tried everything I can think of. The gynocolgist (might not have spelled that right) did …

Comments: 0

new to the forum, newly diagnosed

Tue Apr 03, 2012 10:22 pm by It Hurts

I've had such stinging pain at the insertion of anything in this area since August 2008. I was six and a half months pregnant and went to my OBGYN immediately and said, "something's wrong". Of course, it was blamed on the pregnancy and the "blood flow" to that area. I had a C-section (age 38 when I had my first and only daughter, Caroline) and waited the 2 months before …

Comments: 5

hey girls.........................

Wed Apr 11, 2012 1:01 pm by ak1981

I'm 30 years old and I'm from Croatia, Europe. Few weeks ago doctors told me that I have V. I have it for little bit more that 1 year. I think the triger was HPV infection.
I'm reading your posts and still I don't want to belive that there is no cure for V. I can't belive that the old nice life is over. I simply don't want to belive it. Especialy now when I have finaly found the love of my life.
…

Comments: 1


acupuncture and herbs/ as well as naet

Vulvodynia Support :: Celebrating the Positive

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acupuncture and herbs/ as well as naet

Post  Melissa777 on Wed Aug 10, 2011 5:22 am

Hi everyone

so... Last Tues I had NAET for Mold/ Fungi
and then acupuncture and begin on an herbal supplement from my acupuncturist to clear heat and dampness... and guess what ONE week later I feel Normal (just about).. yes thats right burning/ itching GONE

Im so excited- my acupuncturist and going to keep me on this supplement for a month


Keep in mind- my VV is MILD
and most likely due to allergies
so..... I may be a rare exception

I also stopped my estrogen cream a week ago

so, lets see what happens


I also got prayed over at church- to those whom believe- i really believe God heals

so amen and praise God to that!!

Yay

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Re: acupuncture and herbs/ as well as naet

Post  lisadoc on Thu Aug 11, 2011 7:21 pm

what is your herbal supplement? glad to hear u are getting relief

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Re: acupuncture and herbs/ as well as naet

Post  Sebby (Admin) on Mon Aug 15, 2011 1:57 pm


Amen!

I do hope and pray for healing for you and all of us

I sometimes find myself slipping away from God, will start praying again big time Smile

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see

Post  Melissa777 on Sun Aug 21, 2011 1:42 am

phellostatin

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Re: acupuncture and herbs/ as well as naet

Post  Heidi on Mon Aug 22, 2011 4:10 am

Good for you! I'm so glad to hear you have found some relief. I've known some women who were helped by an anti-fungal diet and by taking pro-biotic supplements to re-balance yeast/bacteria in the body. They both said they started having problems with vulvar pain after taking a lot of antibiotics. What is a NAET for fungi/mold? This seems related to me.
Heidi

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naet

Post  Melissa777 on Mon Aug 22, 2011 4:21 am

Naet is a natural allergy technique rather than getting allergy shots... it includes no injections =)

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Vulvodynia Support :: Celebrating the Positive

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